Centers Offering Care for People at Genetic Risk
Clinical centers that welcome people and families affected by genetic risk for ALS and FTD.
Some people at genetic risk for ALS or FTD want access to genetic counseling, clinical evaluation, or ongoing monitoring before receiving a diagnosis. ETL identifies clinical centers that have expressed a willingness to see people at genetic risk and discuss the services available to them.
Services, eligibility requirements, costs, insurance coverage, and research opportunities vary by center. Please contact each center directly for current information.
Participation in ETL’s program is intended to help community members identify welcoming centers. It is not a clinical accreditation, certification, or endorsement of every service or research study offered by a participating institution.
End the Legacy At-Risk Care Centers Program
ETL developed this initiative to encourage knowledgeable and compassionate clinical services for people at genetic risk who wish to pursue them. Participating centers have expressed their willingness to welcome members of this community and provide information about available care or monitoring.
Learn more about the program and ETL’s recognition process here.
