OUR STORY

 Genetic ALS & FTD: End the Legacy was born through the efforts and vision of dozens of people impacted by genetic ALS and FTD who collectively saw the need for our community's voice to be heard . 

Since our forming as a group in 2020 and especially since our debut as a non-profit in 2023, we have been proud to witness how our activities have changed the conversation around inherited ALS and FTD. We are possible due to the commitment and passion of many volunteers, and we are always recruiting!