End the Legacy's 2025 Genetic ALS & FTD Community Summit
Come Together in 2025!
Following the success of our first in-person summit last year, we are coming back together this time in Philadelphia PA with local host the ALS Hope Foundation.
June 6th - 8th 2025
What to Expect
Joining dozens of other impacted individuals in person to engage in these challenging and personal topics can be transformative. We have talks lined up on mental health for those at risk, new clinical guidance for our community, how to impact policy to benefit us, and more. Speakers already secured include clinicians, genetic counselors, researchers, and dedicated patient advocates.
Logistics
All attendees will have their hotel stay covered if traveling from out of town. All meals will be provided during the meeting. Travel subsidies for those who need it are available. The event will start mid-day Friday June 6th an conclude by mid-day Sunday June 8th. To secure your spot, a nominal $75 registration fee is required.
Questions?
Email us at info@endthelegacy.org