Genetic ALS & FTD Webinars

Ensuring our community and all those interested in Genetic ALS & FTD are able to hear directly from people working on topics of interest to and about us is a top priority for us. Below, see a list of our webinars, freely accessible on YouTube.

C9orf72 Penetrance Calculation Webinar

In 2024, we hosted Oxford Geneticist Dr Andrew Douglas as he spoke detailing a method to provide penetrance calculations for C9orf72 families.

C9orf72 Penetrance Calculation Webinar

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Genetic Research Education Series

In 2024 we arranged 4 webinars focused on research opportunities for people impacted by 4 ALS and FTD genes.

GRN Research Webinar

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Genetic Research Education Series

In 2024 we arranged 4 webinars focused on research opportunities for people impacted by 4 ALS and FTD genes.

TARDBP Research Webinar

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C9orf72 Loss of Function Theory

In 2024 we hosted noted researcher Prof Janice Roberstson.

C9orf72 LOF Webinar

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Excercise in ALS

In 2023 we hosted PhD Daniel Brickman discussing what a literature review shows regarding ALS and Excercise

Excercise in ALS Webinar

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C9orf72 Penetrance Update

In 2023 we hosted the first public discussion of a new analysis of the penetrance of c9orf72.

C9orf72 Penetrance Webinar

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Cardiovascular Health in Genetic FTD

In 2023 we hosted a researcher how shared what cardiovascular health may relate to risk of genetic FTD

Cardiovascular Health in Genetic FTD

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C9orf72 Therapeutic Approaches

In 2023, we hosted Dr Rothstein on the topic of C9orf72 therapeutic development.

Dr Rothstein Webinar

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Cryptic Exon Biomarker Talk

In 2023 a researcher shared about a new TDP-43 biomarker candidate.

TDP-43 Cryptic Exon Biomarker

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Genetic Research Education Series

In 2024 we arranged 4 webinars focused on research opportunities for people impacted by 4 ALS and FTD genes.

C9orf72 Research Webinar

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Genetic Research Education Series

In 2024 we arranged 4 webinars focused on research opportunities for people impacted by 4 ALS and FTD genes.

SOD1 Research Webinar

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Genetic Testing in ALS 2024 Webinar

In 2024 we hosted a webinar on practical updates in ALS Genetic Testing.

Genetic Testing Webinar

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NASEM Report Out

In 2024 we hosted a discussion on the recently released NASEM report on ALS.

NASEM ALS Report Webinar

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Genetic Modifiers In FTD

In 2023 we hosted researchers from the Raddamaker lab.

GRN Modifier Webinar

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C9orf72 In Population Screens

In 2023 we hosted a geneticist who studied how often C9 appeared in the general public.

Expansions in General Public Webinar

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The Gut in ALS Development

In 2023 we hosted Dr Jenna Gregory sharing on her research in ALS pathology.

The Role of the Gut Webinar

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Brain Function In Familial ALS

In 2023 we hosted a talk from Dr Kiernan.

Brain Function Webinar

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