Genetic ALS / FTD Research Education Series: Focus on TARDBP
Thu, Sep 12
|Zoom Webinar
Thousands of healthy people around the world carry one of the variants in the TARDBP gene associated with ALS and FTD. A hundred or more are currently living with an ALS or FTD diagnosis. Learn what research is available for people impacted by this gene to participate in.
Time & Location
Sep 12, 2024, 2:30 PM – 4:00 PM PDT
Zoom Webinar
Guests
About the event
Thousands of healthy people in the world have pathogenic TARDBP variants, and around 100 more have an active ALS or FTD diagnosis - what research is available for them to participate in? It can be hard to understand what research participation is available. It can be even harder to picture what participating in research is like! Hear from experts about what research is available and from everyday people with the mutation about what participating looks like for them. Speakers include Dr. Neil Shneider and Ms Elizabeth Harrington from the Eleanor and Lou Gehrig ALS Center at Columbia University and will be hosted by Dr. Nadia Sethi.