Genetic Information for those impacted by inherited ALS and FTD

​Too often the only information many of us can find is written by researchers for researchers. Additionally the information is segregated in rational scientific separations, but not wholistic as may be sought by a person directly impacted. 

Our well cited information guides are intended to fill that gap. Never again should the information from our families be made inaccessible to us. The information is presented as it was when these were written and we expect new updates to occur.